Nebyu Taddese Story

When Anna Argaw’s son, Nebyu Taddese, was diagnosed with epilepsy it came as a shock. He was in Grade 10 and his seizures appeared suddenly. Even more shocking was his unexpected death from SUDEP only a few years later at the age of 19.  Nebyu was a lovely and extraordinary person who lived with and battled epilepsy.  He enjoyed sports, especially hockey and dreamed of being a sportscaster.  Read more

When Anna tragically lost Nebyu at the age of 19, she decided that there’s no better way to remember him than by raising money for Epilepsy Toronto.

This year, Anna and her friends have decided to support the work of CareEpilepsy in Ethiopia (where he originally comes from). 

“As a family, we decided that there’s no better way to remember him than by raising money to make a difference in our homeland, Ethiopia where there is a lack of medication, treatment, and awareness about epilepsy”.   

“Nebyu leaves behind so much love and memories and a huge hole that can never be filled. While as a family we may never make sense of his early passing there is a determination and hope that by supporting CareEpilepsy in their work we can help to raise awareness and support the provision of medication that may prevent it from happening to someone else in the future.”

The amazing 4,000 raised by Anna’s family and friends will go towards raising awareness and supporting people with epilepsy in Ethiopia. 


A gift in memory of any size will help CareEpilepsy to change and transform the lives of the most vulnerable and marginalised children and adults living with epilepsy in Ethiopia, providing the help they need when they need it most.

There are several ways to make a donation in memory; Online – you can donate online here.  or contact us to discuss your preferred way.




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